Funding: Hershey, PI; (HD070855) 2012-2023
Clinical Trials # (https://clinicaltrials.gov/)
The purpose of the Washington University Wolfram Syndrome Research Clinic is to better understand the development and progression of the neurological aspects of Wolfram syndrome. During annual research visits patients are seen by specialists in multiple disciplines (ophthalmology, neurology, psychiatry, audiology) and undergo magnetic resonance imaging (MRI) of the brain. These data help us understand the neurological issues in Wolfram Syndrome, and will directly inform the design and metrics used in future clinical trials.
For a list of publications resulting from the Wolfram Research Clinic please click here
If you (your child) are interested in participating in the Wolfram Research Clinic please contact Samantha Ranck, MSW, MA, PLPC at (314) 362-6514 or firstname.lastname@example.org. You will be asked to complete an on-line screening questionnaire to determine your eligibility.
Clinical Care: Dr. Marshall is a pediatric endocrinologist who sees Wolfram Syndrome patients clinically and consults with physicians across the country. For questions about clinical care, contact her at email@example.com or 314-454-6051.
Additional Research Opportunities:
University of Maryland Brain and Tissue Bank. The National Institute of Child Health and Human Development (NICHD) supports the Brain and Tissue Bank for Developmental Disabilities. To learn more, please click here.
Read our Wolfram Clinic Newsletters
October 2020 Newsletter
March 2020 Newsletter
March 2020 Newsletter-Spanish version
August 2019 Newsletter
May 2019 Newsletter
February 2019 Newsletter
November 2018 Newsletter
August 2018 Newsletter
May 2018 Newsletter
February 2018 Newsletter
November 2017 Newsletter
August 2017 Newsletter
May 2017 Newsletter
February 2017 Newsletter
November 2016 Newsletter
August 2016 Newsletter
May 2016 Newsletter
February 2016 Newsletter
December 2015 Newsletter