Funding: Hershey, PI; (HD070855) 2012-2023
Clinical Trials # (https://clinicaltrials.gov/)
The purpose of the Washington University Wolfram Syndrome Research Clinic is to better understand the development and progression of the neurological aspects of Wolfram syndrome. During annual research visits patients are seen by specialists in multiple disciplines (ophthalmology, neurology, psychiatry, audiology) and undergo magnetic resonance imaging (MRI) of the brain.
These data help us understand the neurological issues in Wolfram Syndrome, and will directly inform the design and metrics used in future clinical trials.
2021 Wolfram Family Conference
Please click here to view the 2021 Wolfram Syndrome International Virtual Family Conference originally presented live via Zoom webinar on Saturday, 7/17/2021. Attendees included individuals with Wolfram Syndrome, family members, physicians, and researchers. Presentations included updates on current research, mental health, and quality of life related to Wolfram Syndrome. Additional information was presented in response to attendees questions. Please send any questions that you may have as well as requests to be added to the bi-annual Wolfram Syndrome Research Clinic e-newsletter to Samantha Ranck at firstname.lastname@example.org.
If you (your child) are interested in participating in the Wolfram Research Clinic please contact:
Samantha Ranck, MSW, MA, PLPC
You will be asked to complete an on-line screening questionnaire to determine your eligibility.
Dr. Bess Marshall is a pediatric endocrinologist who sees Wolfram Syndrome patients clinically and consults with physicians across the country.
For questions about clinical care, contact her at:
Bess Marshall, MD
Additional research opportunities
The National Institute of Child Health and Human Development (NICHD) supports the University of Marlyand’s Brain and Tissue Bank for Developmental Disabilities.
Read our Wolfram Clinic Newsletters (pdf)
- March 2021 Newsletter
- October 2020 Newsletter
- March 2020 Newsletter
- March 2020 Newsletter-Spanish version
- August 2019 Newsletter
- May 2019 Newsletter
- February 2019 Newsletter
- November 2018 Newsletter
- August 2018 Newsletter
- May 2018 Newsletter
- February 2018 Newsletter
- November 2017 Newsletter
- August 2017 Newsletter
- May 2017 Newsletter
- February 2017 Newsletter
- November 2016 Newsletter
- August 2016 Newsletter
- May 2016 Newsletter
- February 2016 Newsletter
- December 2015 Newsletter